Education/Support

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Feeding Support:

ParENTalk.com

Provides parents and caregivers the tools and resources needed to help navigate through the emotional and physical aspects of caring for a child with a feeding tube

Feedingtubeawareness.org

A group of parents who are raising infants and children with feeding tubes who want to share their experiences along the way in addition to raising awareness of tube feeding.

Oley.org

The Oley Foundation is a national, independent, non-profit 501(c)(3) organization that provides information and psycho-social support to parents and caretakers of children with enteral nutrition needs

InsideOutCare.com

Get answers. Everything you need to know about feeding tubes. Get the facts from medical experts. Get real-life advice and stories from real families.

      • Access to a community of people like you
      • Real-time stats and stories of patient experiences
      • Learn from step-by-steps and advice from experts
      • Get prepared for clinic appointments and everyday life

Respiratory:

American Lung Association

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease.

Hydro Support

Children’s Hydrocephalus Support Group A family oriented support group hosted by Seattle Children’s Hospital